Sorry I haven’t posted recently — after I got the news about the meningeal carcinomatosis, I was pretty down for a couple days. Tried anti-depressants — for two days — boy I don’t like those, I discovered!
About a week after my diagnosis, we were doing a big photo shoot at my house for a national PSA campaign, and all of a sudden, I couldn’t make sense of what I was trying to say, my hands went numb, and I started slurring my words — luckily I had a lot of people around who took care of calling the ambulance for me.
Matt, my friend Vandy, and Dr. Jack all met me in the ER — by this point I could speak again, and things were more or less back to normal, but I was pretty much terrified. Jack changed my dosage of Tarceva to 4/day, then wait 4 more days, take 4, wait four days, and so on….he also sent off some of my tumor tissue to see if I was positive for the EGFR mutation…took about a week to find out, but last night, I am happy to say that I DO have that mutation, which makes us at least a little hopeful that we can eradicate some or all of this new development.