My appointments with Jack always seem to be on a Tuesday, and lo and behold! I have one today. Just labs, and a little check in — my scans won’t be for another three weeks. I’m feeling pretty good these days — still have a stiff back and shoulders until I take my once a day tylenol, and I have definitely gone back to the wigs full time to keep my vanity satisfied — personally, I feel it’s easier to be positive about how you’re doing when people aren’t looking at your male pattern baldness in horror and/or pity. But that’s just me.
I’m still not allowed to drive — I imagine that we’ll discuss that in three weeks when I have my scans. I know Jack thinks I’m going to bug him about it today, but I’m not. I’d like to know what’s going on first too– don’t want to risk having an episode with Lucie in the car, or endangering other’s lives.
Speaking of episodes, it has been a whopping 26 days since my last one, and that was a very minor numb hand for about 3 minutes. I really have to believe that this Tarceva is working, and I continue to be grateful for every day that I get. And I am starting to make plans again — a couple of months ago, I couldn’t even think about the summer without wanting to burst into tears — was I even going to be here? Would I be able to function or speak? But faith is slowly coming back to me, and I am cautiously optimistic that I will at least have another summer to share with my daughter, husband, family and friends.
There is no PG way of saying this so I will just throw it out there….You kick ass! (sorry for the offensive language) I have been trying to wrap my head around how you have been dealing with this horrible disease and yet you manage to make me laugh out loud on some of your blogs, so I have come to the conclusion that you are superwoman!
We think about you daily and are hoping for some great scans real soon.
Lots of Love,
Angela & Reggie Jackson
Keep on keeping positive Melissa!!! We are all rooting for you
Regina
go get ‘em. always there for you! we got plans to make, my dear, for this summer and beyond.
I’m with Denise. Phoebe definitely needs a little intro to the PNW this summer and to have some fun with Auntie Melissa. (she has male pattern baldness at the moment too btw). Love you and can’t wait to see you!
As they say on American Idol (OK – I admit I watch sometimes) – I am “running out of adjectives to describe you”. Please know how much you are loved! Your battle with this cursed thing is nothing short of AMAZING!!! Keep on with all that planning!!
Yes my dear. Make plans. Like let’s get together!
xxoo
Deborah
There is no choice in the matter. Look forward, make plans, and let Tarceva and vanity take care of the rest!!! You are always in our thoughts. We are sending positive and healing energy to you from San Diego.
Lots of love,
Jean-Luc and Megan Brebant